Our Mission is to:
1. Cure this condition through promoting research by supporting scientists and sharing their meaningful work.
2. Educate children with a focus on their needs about how to thrive emotionally and physically. We create the top fun programs for kid and teens facing a unique health situation.
3. Educate adults about their changing lifestyle needs and provide a creative support system. We strive to turn scary situations into a life that can be enjoyed.
4. Collaborate with doctors and reward the best for their quality of treatment. People all over the world should have access to the best medical care. We connect and help people fund what can be very expensive treatment.
5. Our events shatter the stigma that those with a rare condition can't participate in active activities. Our events get everyone moving and living life the fullest.
P.S - WELCOME!!!!
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